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28 Apr

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Participants 1211 participants (24% confirmed social care recipients) took part in the study.

Healthcare participants were recruited on the basis of having one of 11 specified long-term conditions (LTCs), and social care participants were recruited on the basis of receiving social care support for at least one LTC.

The LTCQ is intended to be relevant and acceptable for people with single or multiple LTCs (physical and/or mental health conditions), and meaningful for health and social care providers in their capacities for monitoring and improving outcomes in LTCs.

Additionally, the LTCQ is intended to be short, easy to interpret and feasible for use in different clinical settings.

Each practice recruited from patient groups representing at least five of the 11 conditions, with some practices asked to prioritise certain conditions that were otherwise under-represented.Recruitment was restricted to those diagnosed more than 12 months previously to ensure that participants had adjusted to their diagnosis and had experienced a range of services and strategies for the management of their LTC(s).Methods and findings presented below follow STROBE reporting guidelines for cross-sectional studies19 and COSMIN criteria for reporting measurement properties of health status questionnaires.20 The latter indicates a minimum sample size of 10 subjects per questionnaire item (ie, 200 participants for this survey validation study), which exceeds the minimum of 100 subjects required for factor analysis within Classical Test Theory.